Loran Denison, 27, was pregnant with her fourth child when a test at 15 weeks revealed he had Edwards’ syndrome. It is a rare condition and most babies with Edwards’ syndrome will die before or shortly after being born. Edwards’ syndrome is caused by an extra chromosome and just 13 in 100 babies born with the condition live until their first birthday.
After being told her baby was unlikely to be born alive, Ms Denison and her partner Scott Watson made the difficult decision to have an abortion.
She took a tablet on April 6 to stop the pregnancy developing and returned to the Women and Newborn Unit at Burnley General Hospital on April 8 to induce the birth.
She was incredibly shaken up when her baby boy was born alive weighing 150g on April 9 at 3.50pm.
They had him blessed and christened in hospital while he was alive and named him Kiyo Bleu. Sadly, he died 10 hours later.
Ms Denison told The Sun: “They said his heart will stop in the next half hour, and I kept ringing the bell to say he was still alive, and I said ‘do you just leave him’ and they said ‘yes’.
“I’m glad I had that bit of time with him but it also made the situation much harder. They told me he had typical Edwards’ Syndrome so would pass away before or just after birth. My boy had a lion heart.
“I thought I had done the hard bit when I made the difficult decision to have an abortion, but now it feels 10 times worse. We had already said our goodbyes when we went in on the 8th, because I’d taken the termination tablet on the sixth.
“I just want other mums to know in case this happens to them. I had to watch his heartbeat getting slower and watch his life draining out of him. You just want to keep your children alive. It was like torture.
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“None of the doctors thought he would be born alive. When my partner picked him up after he was born he said ‘his heart is beating’, and they said ‘no way’.
“When I took the first tablet they said it would stop the pregnancy, heartbeat and everything, so we expected he wouldn’t be alive when he was born.
“They didn’t check for a heartbeat before inducing labour, and I wish they had. I don’t have words for how awful it was.”
After he died, baby Kiyo went home to be with his mum, dad and his three siblings for four days until he needed to go to a funeral parlour on April 14 ahead of his funeral.
Devastated Ms Denison said: “It was awful. I can’t get my head around how he survived. Kiyo was so strong now I wonder if he would have lived. His heartbeat was so strong you could feel it.
“If I had known he would be born alive I probably would have made a different decision. I thought I was doing the right thing but now I think I have done the wrong thing. He just looked so normal.”